Pharma charity hope for kids with spinal disorder

For Mahim resident Zeba Gufran, whose husband works in Egypt, funding her son’s treatment is simply impossible. While Affan Farooquie’s spinal injection treatment (Spinraza) cost will become Rs 3.2 crore from the second year, a one-time gene therapy shot (Zolgensma) costs Rs 16 crore. A daily syrup (Evrysdi) is available in India since July at a cost of Rs 72 lakh in the first year and Rs 56 lakh thereafter. A lung or liver transplant would, in contrast, work out to Rs 25 lakh to Rs 30 lakh or cutting-edge cancer immunotherapy about Rs 2 lakh a month.

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